Overcoming Ewing Sarcoma: Ace’s Story of Hope and Resilience

15/09/2026

Childhood Cancer Awareness Month highlights the incredible courage of young patients and the critical role of early detection. Ewing sarcoma is a rare type of cancer that affects the bones or surrounding soft tissue, making it the second most common bone cancer in children after osteosarcoma.

Because active children often run, play, and experience minor injuries, the early symptoms of Ewing sarcoma may sometimes be mistaken for routine sports injuries or muscle pain. This is why persistent symptoms should not be ignored.

Recognising the Warning Signs

According to Dr Eni Juraida Binti Abdul Rahman, Consultant Paediatrician and Paediatric Haematologist & Oncologist at Sunway Medical Centre, Sunway City, Ewing sarcoma typically affects older children and young adults.

Some key symptoms parents should watch for include:

• Persistent swelling in the affected area
• Ongoing pain that may initially come and go, but eventually persists despite pain medication
• Systemic symptoms, such as recurrent fever that does not go away

While not every pain or swelling is cancer, symptoms that linger, worsen, or do not respond to usual treatment should be assessed by a doctor.

Ace’s Journey with Stage 2 Ewing Sarcoma

At 14 years old, Ace developed pain in his left chest and back. Like many active teenagers, he initially thought it was routine muscle pain. However, when the pain persisted and was accompanied by recurring fevers, his parents brought him to the hospital for a thorough check-up.

In September 2024, Ace was diagnosed with stage 2 Ewing sarcoma.

The diagnosis was frightening and overwhelming for Ace and his family. Like many childhood cancer journeys, the road ahead required courage, patience, and strong support. Treatment for Ewing sarcoma may vary depending on the type, location, and stage of the cancer, and may involve chemotherapy, surgery, radiotherapy, or a combination of these treatments.

Throughout the difficult days — when Ace felt exhausted, discouraged, and alone — he drew strength from his parents, Dr Eni, the nursing team, and his care team at Sunway Medical Centre. Beyond medical treatment, the team provided holistic care to support both Ace and his family through the physical and emotional challenges of treatment.

Ace completed his treatment in April 2025 and has successfully recovered, returning to the things he loves.

“If you're on a similar journey, please don't lose hope. Take one day at a time. Listen to your doctors and lean on your family and loved ones whenever you need them. If I could get through it, so can you.”
— Ace

A Message for Parents and Caregivers

Dr Eni emphasises that childhood cancer is potentially curable, and early recognition of symptoms leading to prompt medical care can make a critical difference to patient outcomes.

For parents and caregivers, the message is simple: if your child has pain, swelling, or fever that does not resolve, seek medical advice early. A timely check-up can help identify the cause and ensure the right care is given as soon as possible.

To make an appointment with our paediatric oncology team at Sunway Medical Centre, please contact us via WhatsApp at +6019-200 9191 or email us at [email protected].